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Short Circuits
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THE ARROGANCE OF AUTHORITY
" Your badge. Show him your BADGE !" "
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The Cut
. . . must be clean. The tool must be sharp and the debris swept away for the healing to occur.
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Be Careful Where You Buy A Puppy
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First Zentangles . . . this is going to be fun
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Movie Time...Eat, Pray, Love
to go around here so I picked up my bag of Wine Gums at Wal-Mart and we saw
Eat Pray Love at a nearby theatre. I enjoyed the wine gums...can't say as
much for the movie.
I had read a review in the weekend paper that made me look forward to food
porn and a good story. Neither happened in the movie. I didn't connect
with anything and at the end of the movie her life had changed, maybe, but
I had no idea how or why it happened. Some man we barely knew seemed to
have made an impact on her but I thought she was trying to "not need a man"
throughout the movie. The food scenes were not so great, didn't make me
hungry in the least. City scenes were ugly. Chanting in the Hindu places
looked like chaos with people laughing and clapping. Nothing spiritual at
all but I got the feeling it was intended to be.
A friend at the office told me next day the book was better. I just can't
say enough bad things about this movie...but as I said earlier, the wine
gums were good!
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Thoughts in the night
not but that will come. I woke up in a panic thinking about MS and how my
life has changed. I haven't come to terms with it. The worst isn't over at
all...it is perhaps only beginning. Why do I have it? This wasn't my plan
at all. I turned 60 at the end of May and had planned to retire and travel.
Why doesn't the College of Radiologists, the government, the MS Society, the
medical community in general embrace a cure that seems to be working on so
many? Why are they trying to squash it? Why are they shutting down
studies, testing, closing doors when they should be opening them? I don't
have time to wait for this.
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A few hours on a warm rock
I began to feel some energy return and was happy for that. My vision is still very bad and I am weak. Mostly, it feels like I am drunk, totally stoned drunk--but my thinking is not drunk-- and the only thing I have had is my medicine.
Paul is still calling and reaching people who can help get me into a study. Many people will not talk to him but he keeps trying and has made a lot of progress. Stanford, Buffalo, Barrie and Bulgaria (the doctor in Bulgaria is working with the Italian doctor who discovered the Liberation treatment for his wife) are places I may have a chance to be seen. He is also calling people in the Canadian Government.
This morning I took 14 prednisone pills and a Xantac to settle the tummy. My head is eventually going to clear and I will feel better.
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Solu-Medrol Treatment for MS
Mostly I have been so wiped out, I just sleep. Cannot focus on reading or television but music keeps me in a good place. Brahms, rich, beautiful and has no ear worms in it.
CCSVI (I may have the letters out of order) Testing & Treatment is going to be difficult to get. They have stopped testing in Montreal at the request of the College of Radiologists. Barry is swamped and if I can get in, it won't be until March 2011. Trying other hospitals and universities in the US...well not me, a friend is doing it for me. When you cannot carry the load it is so good to have someone carry the things you can't. My sons and daughter-in-law have been a great support too.
I appreciate your prayers.
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Didn't get to the BBQ
My homecare nurse walked in this morning and first thing she said was in surprise, "this is supposed to be helping you." I was very unsteady on my feet and my vision was worse. She warned me not to drive today...she didn't need to! I slept for hours after being hooked up to the new bag and woke up feeling even worse. I had only a little center vision and could barely stand. Slept most of the afternoon. I couldn't go to the bbq but Craig came over for a while. I liked the shirt he was wearing.
The brain fog began to clear about 6:00 PM but my vision is still not good. I have a little more energy right now. I cannot go to work like this on Monday. two more IVs to go and then I start the pills and the dose will diminish every day. This treatment is going to help me. Thanks for all your encouragement and kind wishes.
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Didn't get to the BBQ
surprise, "this is supposed to be helping you." I was very unsteady on my
feet and my vision was worse. She warned me not to drive today...she didn't
need to! I slept for hours after being hooked up to the new bag and woke up
feeling even worse. I had only a little center vision and could barely
stand. Slept most of the afternoon. I couldn't go to the bbq but Craig
came over for a while. I liked the shirt he was wearing.
The brain fog began to clear about 6:00 PM but my vision is still not good.
I have a little more energy right now. I cannot go to work like this on
Monday. two more IVs to go and then I start the pills and the dose will
diminish every day. This treatment is going to help me.
Thanks for all your encouragement and kind wishes.
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A harder day than expected
But it will get better, they promise me.
Homecare nurse arrived before 8:00 AM, I went out to meet her in the parkinglot because it is a little difficult to find this place first time. She set
the pump up and gave me instructions and her telephone number in case
anything went wrong. Driving to the office the alarm began to beep and I
went in with the alarm sounding. Called her and she talked me through
resetting it. Air bubbles had collected and had to be cleared. I was
afraid of the pump. Two more calls to the Nurse and 4 hours later, I am no
longer afraid of the pump. Side effects began to be apparent right away. I lost vision during the day
in the upper regions of my eyes. I was less steady on my feet and knew I
would be unable to drive home. Called my son who said he would be there to
drive me home at 3:30. I got outside at the appointed time and waited
twenty minutes, hanging onto a post but he didn't show up. I went back
inside to call him and he was standing in line at the bank. I fell apart.
I was so exhausted. Lynda, a friend in the office, came over towards my desk and I was crying.
I shooed her away, sympathy at that time would have made me totally loose
it. I apologized to her later. She understood and was very
encouraging...more tears. Tears just keep coming. Depression is apparently
one of the side effects of this medication and perhaps the reason for the
tears. I have lost 14 lbs on a diet recently. The saline solution used the
past two days has made me regain 4 lbs. Discouraging. I have to see this
through because it will help. Many people have offered encouragement in the comments at my last post and I
thank each one of you for the emotional support. I am just too tired to
respond right now but I will...it is going to get better here. Tomorrow I am going to a family bbq at my daughter-in-law's parents
home--after the third iv has finished. I hope to enjoy the day and I look
forward to it very much.
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A harder day than expected
Homecare nurse arrived before 8:00 AM, I went out to meet her in the parking
lot because it is a little difficult to find this place first time. She set
the pump up and gave me instructions and her telephone number in case
anything went wrong. Driving to the office the alarm began to beep and I
went in with the alarm sounding. Called her and she talked me through
resetting it. Air bubbles had collected and had to be cleared. I was
afraid of the pump. Two more calls to the Nurse and 4 hours later, I am no
longer afraid of the pump.
Side effects began to be apparent right away. I lost vision during the day
in the upper regions of my eyes. I was less steady on my feet and knew I
would be unable to drive home. Called my son who said he would be there to
drive me home at 3:30. I got outside at the appointed time and waited
twenty minutes, hanging onto a post but he didn't show up. I went back
inside to call him and he was standing in line at the bank. I fell apart.
I was so exhausted.
Lynda, a friend in the office, came over towards my desk and I was crying.
I shooed her away, sympathy at that time would have made me totally loose
it. I apologized to her later. She understood and was very
encouraging...more tears. Tears just keep coming. Depression is apparently
one of the side effects of this medication and perhaps the reason for the
tears. I have lost 14 lbs on a diet recently. The saline solution used the
past two days has made me regain 4 lbs. Discouraging. I have to see this
through because it will help.
Many people have offered encouragement in the comments at my last post and I
thank each one of you for the emotional support. I am just too tired to
respond right now but I will...it is going to get better here.
Tomorrow I am going to a family bbq at my daughter-in-law's parents
home--after the third iv has finished. I hope to enjoy the day and I look
forward to it very much.
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It started with a little tingle on my tongue
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No Arms, No Legs, No Worries - Nick Vujicic, Motivational Speaker
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Grieving Geese--Goslings Gone
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No bathing suits in the lobby
(1899 KB)
Watch on posterous
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Mother Goose, A Happy Ending!
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